Because of Niamh’s feeding problems, and her persistent problem with reflux, she had had a gastrostomy fitted (a tube directly into her
This became her only route of feeding as she was not able to properly coordinate her swallow so eating orally became dangerous for her.
Niamh was given a liquid only ketogenic diet in the form of a ‘formula feed’ called Ketocal which was put into her gastrostomy tube.
I have to say that I was pleasantly surprised at how easy this was, considering all the things I had read about the diet before we started it.
It was just like making up her baby formula milk.
Over the 2 ½ years Niamh was on the diet, we mainly used Ketocal liquid formula but during times when her stomach was particularly bad
we also tried a modular version of the Classical diet (where you add all the components separately). This was slightly more tricky, as Niamh was fed so slowly that it all used to separate out before it got into her, so on a couple of occasions she had her full daily dose of carbohydrate/protein in one go, followed by her full dose of fat! – for those of you that understand how the diet works, this was not good and left us with a very poorly girl.
Fortunately, there was no lasting damage done and as with everything, you quickly get used to the new regime and work out for yourselves ways to overcome the problems - it soon becomes second nature.