We started with new therapy stiripentol, clobasam, keppra and phenobarb.
At that time Marija was sleepy, floppy, she stopped making visual contact, lost head control, lost motor and social skills and we started to use feeding tube. Her seizures did not stop and she stilll has 5-6 seizures a day.
At the same time we were in hospital, Marija coughed up blood.
After testing, the doctors told us that she had idiopathic pulmonary hemosiderosis (IPH) so she started with therapy for this too with azathioprine and prednisolone.
We stayed in Belgrade hospital six months.