Harry was born on 19th April 2003 and started having seizures when he was only a few days old. He was taken into hospital for further investigations but all the tests he had came back clear.
Harry tried numerous anticonvulsant drugs with mixed results. Many drugs seemed effective initially, but success was not lasting, and Harry continued to seize.
At 4 months old Harry was diagnosed with MPEI and his family were devastated. He tried the ketogenic diet, and although this treatment did not stop his seizures, it did reduce them and he became more alert and happy for a time.
When he was well, he enjoyed being in his spa pool, warm baths and aromatherapy massages.
Harry developed profound and multiple disabilities, and his condition progressed and deteriorated over a number of years.
Harry passed away shortly after his 5th birthday at home in his Mummy and Daddy’s arms.